It is currently way past midnight, and after a fifteen-hour day of nonstop action, I should probably be well into my REM cycle right now. However, before I head to bed, there’s something I must share with you first. Today was one of those days that I’ll never ever forget, and it is all because of the incredible kindness that came from so many incredible people. Today, 450 people gathered to join the fight in finding a cure for Spinal Muscular Atrophy at our 5th annual Working On Walking fundraiser, and I had never been more overwhelmed with gratitude. As I looked around the room, I reflected on the previous years’ events and how far my committee and I have come in just four years. To think that we started this fundraiser with just a little over one hundred guests, and then there we were tonight, sharing a beautiful evening with several hundred friends and family. It doesn’t get any better than that. Thank you for your generosity, and thank you for joining me in my quest to find a cure. But, most importantly, thank you for making an extraordinary difference in the lives of so many people afflicted with this disease. Today was truly remarkable. Goodnight.



Author: Alyssa

Chronicling my journey while teaching the world that I have SMA, but it will NEVER have me. Life's what you make it, dare to make it a remarkable one✨


  1. Wow!!! What a remarkable evening it was! I was so happy to be a part of it. Many thanks to everyone who made it happen.

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