To the most remarkable community I’ve had the pleasure of getting to know- thank you for all your thoughts and prayers over the last several days while I’ve been in the hospital. They WORKED, and I am home, happy, and on my way to feeling like myself again.

These past couple of weeks have been both physically and emotionally trying for me. Sixteen days ago, I started out with the flu, and about five days into the virus, my body basically shut down from too much stress. From there, I went to the local hospital for an overnight stay, came home, and fought the flu with the amazing help from my parents and nurses. At the same time, however, I was experiencing difficulty keeping any food down.

I went a full week without eating. Any morsel of food made my stomach violently ill, and I was on a very fast downward spiral. After using what little strength I had to fight the flu, I had grown incredibly weak incredibly fast being unable to get food into my system. That was when we decided to head to Boston Children’s Hospital.

I can’t say this was an easy hospital trip for me, and for the first time in a long time, I felt helpless. I was scared, I was hungry and I felt as though I was slipping away. As I lied still for days hooked up to machines and with a tube in my stomach, I questioned whether or not I had the ability to bounce back. I used to be so strong. I was always the girl who persevered and triumphed in my trials and tribulations. Where was she? What had happened to her? Then, one day underneath the fluorescent lights, it all came flooding back to me…

It takes being weak to understand what it means to be strong. It takes some of the most trying times to realize that you still have the tenacity to fight. It takes time, it takes patience, and it takes faith. But, it will always get better.

Thank you again for all your sweet, funny and heartfelt messages and gifts that carried me through this time. Thank you to the most remarkable ICU staff at Boston Children’s Hospital for proving, once again, that I am incredibly fortunate to have some of the best doctors in the world right in my backyard. Thank you to my parents who fought just as hard alongside of me and never left my side. I couldn’t have done it without any of you.

Boston Children's Hospital ICU

Author: Alyssa

Chronicling my journey while teaching the world that I have SMA, but it will NEVER have me. Life's what you make it, dare to make it a remarkable one✨


  1. I knew you would fight back, because you are remarkably you! Besides you had God on your side! Love you always MFA

  2. Alyssa,
    You really are remarkable! You and your family are always in my prayers. Thank God you are feeling better. Thank you for sharing, you are an inspiration.

  3. So very happy to read this, you are amazing and your strength is abounding. Continue to stay well and good thoughts continue to be sent your way.
    Mary Fran
    Lisa’s friend

  4. Miss Remarkable , yup that’s it I’m changing your name . It was a tough battle for you I’m sure ,however you fought back like the trooper you truly are, You are my hero !! Can’t wait to see you in a few weeks. 😘

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s